Blog; update

So it’s been a while, life has been busy, but writing my update tonight for my food allergy friends allergy awareness month gave me a sense of gratitude as to how far we have actually come.

I remember when we didn’t have a label or know what Brooklyn’s food allergies actually were – iGe and at risk of anaphylaxis – some things pointed to that as he appeared to get hives from some foods, at one point I also considered FPIES because he had profuse diarhoea for 3 weeks following his 12 months vaccinations *note – not anti vax, you will see my blogs, we received advice, were educated and proceeded on that basis.*

But we actually really went back to what the ED and Paed initially said – allergic collitis/proctocollitis, we just seem to have been caught in a web of medical practitioner’s who knew nothing about these non iGe allergies along the way that made the lines a little grey so I am so GRATEFUL we have an amazing allergist we now work with every step along the way.

Little man is thriving and I can confidently say he is improving.

We have still seen some reactions to his soy trials – this is the only one we have tried so far. We will do wheat next, I keep procrasting, but we will do it.

But even his reactions with soy have been heaps better, he isn’t in extreme pain and the symptoms subside typically after 24 hours which is amazing as it used to be around 4 days. He also has not had any eczema in AGES.

He loves his food he can eat *I am so sorry if this is a sore point for some people I really am, my heart goes out to you and I can only hope that things improve for you too*

We have been able to get a little more spontaneous and not be so withheld by the allergies.

Things are looking up although there is still a long road ahead.

How are things progressing for you? Would love to hear.

Meowmy x

3 thoughts on “Blog; update

  1. Hi!
    Thank you for your blog, I’ve tried several of your recipes (lamb kofta again tonight and Vegan egg quiches for breakfast – amazing!) and I find myself coming back to it for inspiration. I’ve also seen your posts in the Facebook breastfeeding mums group. ☺️

    It’s great to hear that your little boy is doing well and you’re managing his allergies. It’s such a tricky journey! My little guy is 17 months old and has cmp, egg and peanut allergies and we have also cut soy and wheat. We didn’t have a great experience with the first allergist we saw initially at 6 months, but I think I’ll look into seeing someone else now to look at other possible allergens and when /how to begin trials.
    Looking forward to trying more of your recipes! ?
    Cathie xxoo

  2. thanks so much for your lovely comment Cathie πŸ™‚ I’m glad you have found the recipes helpful, I need to get around to adding some more πŸ™‚ Hope you have some more luck with the new allergist, has your bub been doing generally ok or you think there’s still some more possible allergens? Michelle x

    1. Thanks Michelle ?
      I think generally my little guy is fine (as fine as you can be with multiple allergies!). His eczema is mild and manageable and we’ve been lucky enough to never have ana reactions or serious hives, it’s mainly nappies we are still working on improving I just feel like there’s a little more going on either down the gluten intolerance/coeliac track or another allergen. ?

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